For instance, how anti-reform protest really has its roots in sponsorship from billionaires who don't worry about how to pay for their health care, how GOP politicians who are supposedly serving their public receive much campaign finance money from health care special interests and how the GOP has offered no reasonable plan for reform. Like this, this, this and this.
This blog started as a result of CIGNA's denial of our coverage. My husband became too ill to work and we thought, rightfully, our disability insurance policy would cover us. After all, he has Multiple Sclerosis, a chronic disease. Disability insurance, as I have demonstrated, is an enormous corporate scam. A gigantic money-making scheme for the health insurance industry and one where they have no intention of actually following through on their contractual obligations.
It's cheaper for the health insurance industry (makes Wall Street happy) to let you file an ERISA claim in Federal Court and maybe one of the judges they have in their back pockets will be there to help them find a way not to pay you.
They hope for one of two things, 1. To wear you (the sick person with no income) down to where you give up or; 2. You will settle for less than the amount of the policy. Either way, they come out ahead and you, the disabled, sick or injured person, come out stepped upon by a large, faceless, inhumane corporation, jobless and without any recourse since insurance is exempt from federal anti-trust laws. You cannot seek assistance from the Federal Trade Commission Consumer Protection agency for example.
Health and disability insurance are not about your health or seeing you get better. Insurance is about profits. And you, premium-paying consumer, get in the way of that.
Illness happens. It's the luck of the draw; the throw of the dice in the great genetic crap shoot that is humanity. We thought we were protected. After all, we did the right things: had disability insurance, we even purchased extra, special, in-case disability coverage. My husband worked hard at his new job. He even worked in a new position at Fidelity Investments all through his chemotherapy treatments.
And while I'm at it with Fidelity, I learned something else. The management of Fidelity is so insulated from the people who work for them, from their own clients even, and are so paranoid they hire companies like Cyveillance (who use free Google searches as part of their "internet monitoring" and "sophisticated intelligence gathering") a regular visitor to my site, to keep up with what is being said about them on the internet. My site? This blog, written by a woman whose husband has Multiple Sclerosis and was forced into signing a separation agreement with Fidelity or allow his health to suffer? I shudder at my own dangerous self.
Fidelity can sponsor a million MS Bike-a-Thons, but their actions with my husband speak volumes about how they really feel about Multiple Sclerosis. Not in my backyard, comes to mind.
Here's an investment tip: Many socially responsible funds do way better than Fidelity funds. Check them out for yourself. Start here. Put your money where people count first.
What Paul and I didn't quite grasp, even in the face of CIGNA's denials, was how insurance companies will do absolutely anything to not have to pay their claims. You really have no idea of this unless you have experienced it yourself. I would have never believed it myself, it is that surreal. We are living proof of their unethical and inhumane behavior. In my blog, I have brought to attention all kinds of claims that CIGNA has refused to pay. They have a particular habit of not paying disability claims to people with Multiple Sclerosis.
Facing a $1400 per month COBRA payment while unemployed is insane. And that's why Health Care Reform needs to pass now, because we should not be faced with this payment while unemployed nor should we be so scared, as we are, to never have coverage again because with Paul's illness, no private health insurer will ever cover him. Why? Having Multiple Sclerosis can be expensive. Is that a good reason to keep someone from receiving health care, America?
But now it's time for me to do more than just write this blog.
Paul and I have started our own foundation, a non-profit 501(c)(3) that will, for now, focus on helping all people with Multiple Sclerosis.
It's the Multiple Sclerosis Activism Foundation, and our aim is twofold. First, we hope to be a resource for questions or issues regarding MS, care, treatments, doctors who specialize in MS or any issue you have that can't be easily answered. We are here to help you. And if we don't have the answers, we will get you to where you need to find the answers. We'll do the work for you. It's a dizzying maze of information out there and we will act as filters and conduits to the correct answers and sources of information.
Second, we are aiming to affect policy when it comes to people with MS and other chronic, debilitating conditions. We do not just want to take a "stand" on a position, we want to affect change as well. And this takes your voices. Let us know your issues, questions and stories. We are here to get your voice heard, to help and to make things better for all people with disabilities.
Finally, our Constitution, which has been thrown around by so many of the anti-reform protesters, the GOP and the Hair-Bumped One's fans as their reason for everything that emanates from their mouths, especially anti-health care reform rhetoric, has made me wonder if these people have even read it. The Preamble clearly states (click on the links for historical context):
We the People of the United States, in Order to form a more perfect Union, establish Justice, insure domestic Tranquility, provide for the common defence, promote the general Welfare, and secure the Blessings of Liberty to ourselves and our Posterity, do ordain and establish this Constitution for the United States of America.
Promote the general Welfare. That means addressing our national happiness, health and well-being. It means it's time to get out of the dark ages of serfs (us) and feudal lords (insurance industry) and take over a program that should not have profit as its most basic of motives.
The Foundation's website will be coming shortly. In the meantime, if you have questions, want your story heard, have a way to help or just want to tell us you are glad we are here, you can reach the MS Activism Foundation at (310) 363-0197.
Fight for Health Care Reform, it's a right you deserve as a citizen of these United States.









Bill Pascoe is CEO of 









